Rare Patient Voice rewards patients and caregivers for sharing their insights
Recruitment company Rare Patient Voice has more than 200,000 registered patients and family caregivers spanning rare, chronic and complex conditions.
Recruitment company Rare Patient Voice has more than 200,000 registered patients and family caregivers spanning rare, chronic and complex conditions.
IVIG reduces the risk of bleeding complications by making it harder for maternal antibodies to target, attack and destroy fetal platelets.
Learn more about how steroid treatment can help infants with FNAIT and how it can affect their immune systems.
Learn more about the symptoms to watch out for that may indicate your child experienced a brain bleed as an infant.
Here is what you need to know to prepare for IVIG treatment, including what to bring, what to wear and what to expect.
If your infant experienced any bleeding in the brain or eyes, they may be referred to a pediatric eye doctor to assess any damage.
Learn more about growth charts, their purpose and what they can tell doctors about infants who have been diagnosed with FNAIT.
Learn more about developmental milestones for infants who have undergone an intracranial hemorrhage and why they matter.
Learn more about how a reduction in fetal movements during pregnancy can be a sign of fetal distress, especially in an at-risk pregnancy.
Any neurological event, such as a brain bleed, can have long-term effects in infants, but these are less likely if treated early.