Advocacy

A few years after my FNAIT diagnosis, I reached out to other moms with FNAIT experience who could understand what I went through.

Family planning gave me the life that I love while also helping me to develop my skills to help others in the future.

I am so grateful that my doctor informed me of all the risks of each type of delivery so I could make an informed choice.

I wasn’t formally diagnosed with FNAIT until I was pregnant with my second child, due to the extensive knowledge of my OBYGN.

Due to the COVID-19 pandemic and issues with insurance, I didn’t start my IVIGIntravenous immunoglobulin A treatment given to pregnant women with a history of FNAIT or known alloantibodies. IVIG reduces the immune reaction against fetal platelets. infusions to treat my fetal and neonatal alloimmune thrombocytopenia (FNAITFetal and neonatal alloimmune thrombocytopenia A rare condition in which […]

In addition to typical pregnancy worries and stress, my mental health suffered during and after my pregnancy due to my rare disease. 

After carrying my daughter for nine months with no complications, a fetal neonatal alloimmune thrombocytopenia (FNAIT) diagnosis was not part of my plan.