A pregnancy affected by fetal and neonatal alloimmune thrombocytopenia (FNAIT) has physical, mental and emotional repercussions that require ample time to recover from. After you deliver your baby affected by FNAIT, be sure to prioritize your self-care, seek support from a therapist and resist any pressure to go back to your routine before fully processing your experience.
What is FNAIT?
Fetal and neonatal alloimmune thrombocytopenia (FNAIT) is a rare but serious condition that affects 0.1% of pregnancies in which a pregnant mother’s immune system produces antibodies against the platelets of her fetus. This occurs when a fetus inherits platelet antigens from the father that are not compatible with the mother, typically involving a protein called human platelet antigen (HPA). The mother’s immune system recognizes the fetal platelets as foreign, attacking and destroying them, leading to low platelet levels (thrombocytopenia) in the fetus or newborn.
Experiencing an FNAIT-affected pregnancy
An FNAIT-affected pregnancy is at risk of developing complications for the baby. Once a diagnosis is confirmed, medical intervention such as intravenous immunoglobulin (IVIG) treatment and regular monitoring by ultrasound and blood tests will be required. The logistics associated with extra time spent at the hospital, the discomfort of tests and treatment and the constant worry about your baby’s health can be exhausting.
Physical and emotional fatigue while pregnant can be hard to manage, in addition to daily life, hormonal changes and preparing for the arrival of your baby.
Whether you have a vaginal or cesarean delivery will depend on the health and overall well-being of your baby. In cases of high-risk FNAIT, a cesarean delivery will likely be suggested approximately two weeks before term.
Find answers to FNAIT FAQs
Recovering from an FNAIT-affected pregnancy
Post-partum recovery takes time, and each mother experiences it differently. The post-partum period begins as soon as you have given birth and lasts about six weeks. This means that part of your post-partum recovery will be spent in the hospital, where your FNAIT-affected newborn is likely to receive treatment or follow-up care. This can make it more difficult to prioritize your recovery, so asking your partner, friends and family for help is essential.
Physical recovery: Healing from a cesarean delivery takes around six weeks, with strict instructions to follow in caring for your incision. A vaginal delivery can be exhausting and involve recovery from stitches for example. Rest, quality sleep, a nutritious diet, low-impact physical activity, relaxation and self-care are essential for your body to recover. Make sure you attend your postpartum medical appointments with your healthcare team to ensure your physical recovery is on track.
Emotional recovery: Pregnancy is often emotionally charged, but a diagnosis of FNAIT can make emotions feel even more intense. Anxiety, stress, uncertainty, guilt, anger, lack of control and fear can all take a toll on a mother’s mental health. Meditation, deep breathing and yoga can help restore a sense of calm. Talking to a therapist is also a good option and helps many women process their pregnancy and birth experiences.
In addition to spending time to recover, the post-partum period is a time for bonding with your baby. Dedicate quality time to bonding with your baby through skin-to-skin contact and feeding–either breastfeeding or bottle feeding.
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